The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)

Pheby, Derek F.H., Araja, Diana, Berkis, Uldis, Brenna, Elenka, Cullinan, John, de Korwin, Jean-Dominique, Gitto, Lara, Hughes, Dyfrig A, Hunter, Rachael M, Trepel, Dominic and Wang-Steverding, Xia (2020) The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE). Healthcare, 8 (2). e88. ISSN 2227-9032

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Abstract

We have developed a Europe-wide approach to investigating the economic impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), facilitating acquisition of information on the economic burden of ME/CFS, and international comparisons of economic costs between countries. The economic burden of ME/CFS in Europe appears large, with productivity losses most significant, giving scope for substantial savings through effective prevention and treatment. However, economic studies of ME/CFS, including cost-of-illness analyses and economic evaluations of interventions, are problematic due to different, arbitrary case definitions, and unwillingness of doctors to diagnose it. We therefore lack accurate incidence and prevalence data, with no obvious way to estimate costs incurred by undiagnosed patients. Other problems include, as for other conditions, difficulties estimating direct and indirect costs incurred by healthcare systems, patients and families, and heterogeneous healthcare systems and patterns of economic development across countries. We have made recommendations, including use of the Fukuda (CDC-1994) case definition and Canadian Consensus Criteria (CCC), a pan-European common symptom checklist, and implementation of prevalence-based cost-of-illness studies in different countries using an agreed data list. We recommend using purchasing power parities (PPP) to facilitate international comparisons, and EuroQol-5D as a generic measure of health status and multi-attribute utility instrument to inform future economic evaluations in ME/CFS.

Item Type: Article
Additional Information: ** From MDPI via Jisc Publications Router ** History: accepted 31-03-2020; pub-electronic 07-04-2020. ** Licence for this article: https://creativecommons.org/licenses/by/4.0/
Keywords: ME/CFS, economic impact, cost-of-illness studies, economic evaluation, healthcare systems
SWORD Depositor: JISC Router
Depositing User: JISC Router
Date Deposited: 15 Apr 2020 08:25
Last Modified: 15 Apr 2020 08:25
URI: https://bucks.repository.guildhe.ac.uk/id/eprint/17993

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